Ahead of the 2020 US National Organization for Rare Disorders (NORD)’s Rare Diseases and Orphan Products Breakthrough Summit, NORD president and CEO Peter L. Saltonstall outlines his hopes for the Summit, the impact of COVID-19 on the US rare disease community, and touches on the current reality and potential problems that could be solved by telehealth.
With rare disease patients and families deeply affected by COVID-19, important policy issues at a critical point and scientific innovation advancing more rapidly than at any time in history, we feel it is imperative for the community to come together virtually to share perspectives and address time-sensitive topics
