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Tagged with Rare Disease

Maria Jose Sanchez Losada – President, AELMHU, Spain
The Spanish Association of Orphan and Ultra Orphan Medicinal Products Laboratories (AELMHU) is a non-profit organisation working to improve awareness…

Tony Zbeidy, General Manager MENA, Recordati Rare Diseases
The general manager for Recordati Rare Diseases in MENA, Tony Zbeidy, explains why awareness of rare disorders has vastly improved in the region,…

Jean-Paul Scheuer, General Manager, Sanofi Genzyme MCO Lead, Gulf…
Jean Paul Scheuer, General Manager for Sanofi Genzyme and MCO Lead for Greater Gulf, highlights the company's expanding footprint in the region, the…

Key Features of Orphan Drug Registration in Singapore, Malaysia,…
Writing in the December edition of DIA’s Global Forum magazine, Agnes Ho, Cindy Zen, and Tan Kwee Lan of Boehringer Ingelheim give an overview of…

Myriam Hakim – General Manager GCC, Kyowa Kirin
Myriam Hakim outlines the progress that Japanese rare disease and oncology specialist Kyowa Kirin has made in the GCC region in recent years; the…

Rare Diseases in MENA and the Need for Infrastructure, Access…
Few stakeholders are better placed to assess the landscape for rare disease therapies across the Middle East and North Africa (MENA) region than Karim…

Khaled Elrefae – General Manager MEA, Ipsen
Ipsen’s general manager for Middle East and Africa (MEA), Khaled Elrefae, highlights the French firm’s expanding footprint in the region, the…

Ercin Kugu – General Manager Turkey & Israel, CSL…
Ercin Kugu, CSL Behring’s general manager for Turkey and Israel, highlights the rare disease company’s footprint in Turkey, explains the different…

NORD’s Breakthrough Summit: Listening to the Rare Disease…
The National Organization for Rare Disorders (NORD) is set to host its annual Rare Diseases and Orphan Products Breakthrough Summit on October…

Karim Smaira – CEO & Kamel Ghammachi – Chairman,…
Kamel Ghammachi and Karim Smaira are the co-founders of Genpharm, an entrepreneurial success story that now provides market access and marketing…

Abidin Gülmüş – CEO, GEN
Few Turkish companies are experiencing such a transformational moment as GEN. Just in 2021, the Ankara-based organization made its public debut at the…

Patrik Forsell – General Manager, Takeda Denmark
Industry veteran Patrik Forsell oversees Takeda’s operations in Denmark. Here, Forsell talks through how sizeable shifts in the company’s global…
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