cerrar
Tagged with Rare disease

Patrik Zachar – Vice President Central Europe, Ipsen
Patrik Zachar, Vice President Central Europe of Ipsen, shares how the company has built a strong presence in oncology and neuroscience in the CE…

Karim Smaira – CEO & Kamel Ghammachi – Chairman,…
Genpharm is a Dubai-based regional company providing market access and marketing solutions for rare disease products in the MENA region. Co-Founders…

Problems Pile Up at Ipsen after Further Clinical Setback
These are worrying times for iconic French mid-cap Ipsen. Trials for palovarotene, a treatment for rare bone disorders, have been plagued by setbacks,…

Tamás Demeter – Country Manager, AOP Orphan, Hungary
Tamás Demeter, Country Manager for AOP Orphan shares his insights on the footprint of the company in Hungary, the areas of therapeutic need that AOP…

Myriam Hakim – General Manager GCC, Kyowa Kirin (January 2020)
Myriam Hakim, the recently appointed GM for Japanese specialty pharma firm Kyowa Kirin’s UAE affiliate, discusses the strategic significance of the…

A New Approach to Rare Diseases in Canada
Pamela Fralick of Innovative Medicines Canada (IMC) advocates for a collaborative multi-stakeholder approach to better tackle rare diseases in Canada.…

Laszlo Dinca – Managing Director, Vanessa Research, Hungary
Laszlo Dinca, managing director of Vanessa Research - Hungary, shares his insights on the company’s rare and orphan disease portfolio; the…

The UAE’s Fight Against Genetic Diseases
With a relatively high number of genetic disorders, the Arab population of the United Arab Emirates (UAE) is increasingly becoming the subject of new…

The Role of Patient Associations in Rare Disease Drug Development
Monica Weldon, CEO and president of Bridge the Gap – SYNGAP Education and Research Foundation, shares her recent experience at the US Drug Law and…

Khaled Elrefae – Middle East and Africa Specialty Care…
Khaled Elrefae, Middle East and Africa Specialty Care Operations Head (GM) for Ipsen, highlights Ipsen’s impressive internationalization strategy…

Maryam Matar – Founder and Chairperson, United Arab…
The United Arab Emirates Genetic Diseases Association (UAEGDA) was established in 2006 and aims to increase awareness programs in order to prevent the…

UAE: A World Leader for Early Access to Innovation
The UAE ranks as a world leader in rapid drug approvals with its fast-track registration system that accelerates the process and eliminates long…
We use cookies to ensure that we give you the best experience on our site. For more info

See our Cookie Privacy Policy Here