cerrar
Tagged with Rare disease

Why Invest in Rare Diseases & Orphan Drugs?
In the run-up to Rare Disease Day 2019, David H. Crean, PhD, Managing Director for Objective Capital Partners, reviews the investment and deal…

A New Era in Access to Rare Disease Drugs in Canada
Durhane Wong-Rieger is the President & CEO of the Canadian Organization for Rare Disorders (CORD). In her first article for PharmaBoardroom,…

Success in Rare Disease Patient Advocacy — What it Takes
After her son was diagnosed with SYNGAP1 – an extremely rare gene mutation – Monica Weldon founded Bridge the Gap – SYNGAP Education and…

China to Cut Taxes for Rare Disease Drugs
It has been announced by China's State Council that as of March 1st 2019, the government will reduce the VAT on a "first batch" of 21 rare disease…

Company Profile: GW Pharmaceuticals
Founded in 1998, GW Pharmaceuticals is a British biopharmaceutical company, best known for being the only company with a license to cultivate cannabis…

Seok Joo Lee – CEO, ISU Abxis, South Korea
ISU Abxis, a subsidiary of the ISU conglomerate, is a biotech company with a focus on orphan drugs and rare disease. CEO Seok Joo Lee explains the…

Jane Griffiths – Global Head, Actelion
Jane Griffiths, global head of Actelion – acquired in 2017 by Johnson & Johnson – discusses her priorities heading up an iconic rare…

Orphan Drugs in the USA: A Snapshot
80 orphan drugs (those drugs intended to treat diseases so rare that sponsors are reluctant to develop them under usual marketing conditions) were…

How Beneficial Is The Recent Price Control Exemption For…
Anay Shukla leads the pharmaceutical, life sciences, med-tech and healthcare practice at Nishith Desai Associates, a leading Indian law firm. In this…

Korea to Strengthen Support for Rare Disease Patients
This week, the Korean Ministry of Food and Drug Safety announced that it would enhance drug safety management and make a new, streamlined review…

Davide Dalle Fusine – General Manager, Chiesi China
Davide Dalle Fusine, general manager for Chiesi China, shares the key milestones for the company in the past five years, their leadership position in…

Canada: Targeting Rare Diseases
The research areas in which Canada has the potential to excel are numerous, one being the world of genomics. The stem cell itself having been…
We use cookies to ensure that we give you the best experience on our site. For more info

See our Cookie Privacy Policy Here