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Tagged with Rare Disease

Bob McLay – Vice President and General Manager, Sobi Canada
Bob McLay, vice president and general manager of Sobi in Canada, discusses how innovation and collaboration with regulators and payers are helping…

Swati Jajodia – Managing Director, Swati Spentose, India
Swati Jajodia, managing director of Swati Spentose discusses her commitment to tackling underserved diseases and the company’s approach to bringing…

Interview: Jürgen Pohle – CEO (as from January 2018),…
Jürgen Pohle provides both a fascinating and open account of the latest movements of Neovii; a company that possesses the ability to make decisions…

Marc LePage – President & CEO, Genome Canada
Marc LePage, president and CEO of Genome Canada describes the early days of the organization and talks modern day plans, such as personalized…

Interview: Joy Ladurner – Co-Director, NKSE, Austria
Joy Ladurner, co-director of the NKSE (National Coordination Center for Rare Diseases) in Austria, discusses the rationale behind Austria’s…

Interview: Eric Tse – General Manager, Shire Canada
Eric Tse, general manager of Shire Canada, highlights the affiliate’s exciting journey over the past four years, including new office location in…

Interview: Mirosław Zieliński – President National Forum…
Mirosław Zieliński, president of the Polish National Forum for the Therapy of rare diseases (ORPHAN), the representative voice for 35 Polish rare…

Clarissa Desjardins – CEO, Clementia Pharmaceuticals,…
Clarissa Desjardins is the founder and CEO since 2011 of Canadian biotech success story, Clementia Pharmaceuticals. She explains the different…

Makoto Suematsu – President, Japan Agency for Medical…
Makoto Suematsu, president of the Japan Agency for Medical Research and Development (AMED), discusses AMED’s successful unification of Japan’s…

Interview: Rudolf Widmann – CEO and Founder, AOP Orphan,…
Rudolf Widmann, CEO and founder of AOP Orphan, the first rare disease-specific European company, discusses the overriding goal to ensure rare disease…

Interview: Wolfgang Harrer – Regional Manager, Chiesi…
Dr. Wolfgang Harrer, regional manager of Chiesi Central and Eastern Europe (CEE), discusses the challenges of managing the region’s diverse cultural…

Interview: David Kasper – CEO, ARCHIMEDlife, Austria
David Kasper, CEO of ARCHIMEDlife, an innovative Austrian company focused on novel laboratory diagnostics, discusses the innovative solution of a…
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